As some of you already know, my niece and nephew suffer from a rare genetic condition called Hyper Insulinism (HI). As a result of this they have spent a large chunk of their young lives at Great Ormond Street Hospital for Children and have both undergone major surgery, some of which was pioneering.
HI is a condition which causes cells in the pancreas to produce excessive amounts of insulin. This results in dangerously low glucose levels in the blood and can lead to a risk of brain damage if not treated quickly.
It is my intention to raise money this summer for the Children’s HI Fund, which is a fund within the Special Trustees Charity of Great Ormond Street Hospital for Children. I completed a Half Iron-Man in the Lake District on the 27th June (1.2 mile swim, 56 mile bike and a 13 mile fell run), which leaves two more events to go - a 100 mile bike ride in Northern Ireland this Saturday and the Ben Nevis half Triathlon on the 11th September (as painful as it sounds).
With the monies raised the HI fund hopes to employ a full time Research Nurse, a Medical Research Fellow (Dr), Technicians/laboratory based people and equipment. Research is needed in many areas of HI including feeding difficulties, long-term neurological implications, consequences of medical therapy and understanding the mechanisms regulating insulin secretion.
If you would like to sponsor me then you can give to me direct or use the Just Giving site http://www.justgiving.com/cycle-hyperinsulinism
Thanks for your support
Alan
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